It was interesting to hear them talking about the causes of autism. It is insane to me that autism is on the rise and is so severe with our baby boys, and there is NO KNOWN CAUSE OR CURE.
Loved when one of the moms said she can't talk about long-term goals yet and how hard it is to think about what it will be like in adulthood for her son. It's easier to take it day by day and focus on the present. I do want to fully prepare Jack for his future as best we can, but who knows what will happen or what Jack will be like by then. No need to worry and fear for the future.
My sweet SIL, Vanessa, sent me this article. This is how I feel everyday- even this morning dropping Jack off at summer school which is specifically for special needs children in our district- he had a melt down and there were at least 15 special education teachers staring at me. One finally offered to help but one said to me, 'why is he upset?' I looked at her dumbfounded that she was asking this. 'I have no idea' was my response. He didn't want to leave me, he didn't want to put shoes on, he didn't want to walk by the bus without singing the wheels on the bus like we always do, who knows. He had overwhelming intense feelings about something and doesn't know how to deal with them. It happens throughout the day. Thanks to ABA training, his meltdowns are fewer and shorter, but they happen. Thankful for the words of this mom in this article. The staring happens even if it's people who you think 'get it'. It's important to remember that I only should care what this guy thinks of me.
We will be walking for Autism on October 18th in Dallas. Check back soon to join our team or get details on a fundraiser we will be doing. :)
No comments:
Post a Comment